I am new here without a final diagnose of Hydrocephalus however the more I learn about it the more familiar it is. Any of this familiar?
The following is my experience:
Intractable Seizures
Grayed-out vision, as in a shutter slowly closing
Double vision
A reduced field or loss of peripheral vision
Punctate lesions in the cerebellar hemispheres
A Subdural Hematoma after a LP, CRANIOTOMY TO REPAIR
Hypertension, ON MEDS
Cerebral Organic Aciduria
BAV (bicuspid aortic valve) REPLACED
PFO (patent foramen ovale) CLOSED
Prolonged PTT
Positive for LUPUS anticoagulant
Diffusely fatty liver
Is the CMAMMA a cause or symptom of Hydrocephalus? Or not related what so ever.
If I do have Hydrocephalus even a slight over drainage of the ventricle from the May 2005 LP would result in a subdural hematoma. This would cause the ventricle to decrease in size to the point where the brain and its meninges pull away from the skull resulting in my subdural hematoma. I found out this is more common in adults than in children. This would explain why there wasn’t any external skull damage.
This would explain the bouts of cyclical vomiting, cognitive & memory challenges with education, clumsiness with fine motor control growing up.
Never crawled but while sitting would lean forward to shift weight, splayed legs out with hands grasping ankles, and pulled myself forward. As I was told “I thumped on my bottom like "Mister Frog” to move around. From this I eventually transitioned to walking.
Never could learn how to swim, water ski, or snow skiing even after multiple years of lessons.
It would explain why the seizures while under Dr. Gates’ 2003 observation and during my 2005 NIH visit did not show what is typically expected and thus judged to not be seizures.
My seizures, recorded by MINCEP during the 12/2006 hospital video monitoring, were both in the left and right temporal lobes.
Hydrocephalus would explain why we have not been able to find the right combination of seizure medications after 10 years of trying. Would also explain why the first and second implanted VNS (Vagus Nerve Stimulator) did not have any effect.
Hydrocephalus, in some documented cases, has been responsive to B12 administration....
Thank you,
Craig